- CASE FILE
Rare Ewing Sarcoma. Wasn't expected to survive, I did. Now having complications with my anatomy. No doctor will touch me. Scratching heads
ABOUT THIS CASE FILE
Herniation of bladder into left labia and left thigh, pelvic ring disruption, I wasn't supposed to survive and my original surgery for my cancer was performed that was but I did! Which everyone keeps telling me when I started to have a lot of pain (which I can deal with) but my bladder has herniated into the void that was left from surgery. With age and gravity everything is falling into my left labia and left thigh. I searched and searched for someone to even take a look at me and all i got was head scratching and you should be thankful you are alive. Well now it is greatly affecting my life and why should just be thankful I'm alive. I have a lot of life to live yet! I did recently go to local cancer center which the 5 surgeon that were confident they could fix me , a year later I am well worse than I was. Now have a weakened abdominal wall and herniation is way worse. NO ONE will come near me! EVERYONE is telling me that there is no literature or anything published or book to follow or what to do. THERE HAS TO BE SOMEONE OUT THERE THAT HAS ENCOUNTERED A CASE LIKE MINE! I can't be the only one to survive a Ewing Sarcoma in the pelvis. Please help me.