- CASE FILE
It all started with migraines, then I started to lose my hearing, and not long after that, my vision. An MRI later, brain surgery.
ABOUT THIS CASE FILE
I was diagnosed with Arnold Chiari Malformation Type 1 in late June of 2018 after experiencing excruciating migraines which in times caused me to lose my vision and hearing at times. I was diagnosed and had my first brain surgery (Chiari Decompression) two weeks later on June 20th, 2018. Since then, I've had many hospital stays, lumbar drains, another brain surgery to correct a cerebral spinal fluid leak and I'm now looking at not one but two other surgery options to correct more issues that I am having. I'm 25 with three children and I just completed my Medical Assisting degree program. This diagnosis has altered my life tremendously. I went from living a completely normal life to living my day to life almost always in debilitating pain.
My children are all under 7 years old, so they require my attention. I would love for them to be able to have their energetic mommy back who didn't have to restrict herself because of the pain she knew would come after. Just the simple tasks as far as getting in the shower or doing laundry can cause a lot of pain. Chiari Malformation affects more people than the world knows and it's time for them to hear about us and it's time for doctors to become educated on helping us. There's are very minimal amount of doctors and surgeons equipped with the knowledge in helping people like me. I would love the chance to be the face of this cure or even a step forward on finding a better way to help us Chiari warriors.