- CASE FILE
I've the past ten years I have slowly began having less and less energy, now I am basically housebound. So many tests but no answers.
ABOUT THIS CASE FILE
For the past 10-12 years I have slowly had less and less energy to where now I am basically housebound except for appointments. Things got really bad the week of my wedding three years ago when I developed PoTS suddenly and extreme fatigue. I don't remember my wedding. Since then the fatigue has gotten worse. I am unable to exercise because it will cause a crash in symptoms. My muscles have a burning pain frequently. I have frequent ectopic beats. I was diagnosed with generalized hypermobility disorder and chronic fatigue syndrome but the cause of my CFS/ ME are a mystery. I have had MRIs, CT scans, normal blood tests, normal adrenal tests, tested for ALS and muscular dystrophy. I've spent so much money on try supplements and other treatments. The only thing that helps a tiny amount is Hyperbaric oxygen Chambers. I don't know what to do anymore. I know chronic fatigue syndrome has no cure but I know something in my body is causing it to happen.