- CASE FILE
Brain lesions (50+) in white matter causing multiple issues. Have seen 3 Neurologists and none have been able to diagnose me.
ABOUT THIS CASE FILE
I had an MRI done 8 years ago due to chronic fatigue, headaches, brain fogginess, tinnitus, and learning disability. The scan showed 50+/- brain lesions in my white matter which doctors have been unable to diagnose. They do not fit the markers for other brain diseases, just a random scattering throughout my white matter. I've had every test done including multiple MRIs, spinal tap, specialized blood tests, psyche evaluation, EEG, etc with everything showing fairly normal. The doctors, including the specialists at UT Southwestern are baffled. They keep trying to prescribe new drugs to me to treat the symptoms but seem unable and unwilling to actually find out WHY I have these lesions. The last doctor at UT actually told me to "act as if I didn't have a medical condition and things would get better. Fake it till you make it." His exact words. This tells me that they've given up on finding. I had meningitis when I was 4 and was in a coma for a couple of days and lost hearing in my left ear as a result. I've heard of other people who had this disease at an early age and who are experiencing my symptoms later in life but the doctors just dismiss the notion that this could be an effect from a childhood illness.