- CASE FILE
I have been sick and looking for a diagnosis/cure for about 10 years now. I'm at my wits end. I've had multiple tests and surgeries.
ABOUT THIS CASE FILE
I was diagnosed with possible carcinoid syndrome but no tumors have been found. I have severe diarrhea often up to 10 times a day. Anytime I eat I'm in the bathroom within 5 minutes. My vitamin levels are always low I've had to have iron infusions through intravenous. I have severe lower right quadrant pain. They thought it was carcinoid due to the facial/chest flushing I get. I've had several imaging scans, colonoscopies, endoscopes and even exploratory surgery to try to find out what is wrong and still am no closer to an answer. I'm currently on 30mg of sandostatin every 21 days to help control my symptoms. So far this has been the only thing to help somewhat. I still have symptoms on it but it make them little more manageable. I've been to several doctors for second, third, fourth opinions. Due to this being a tough case I'm often sent away with them saying they cant find anything. I only have one gi doctor who hasn't given up on me yet. I'veost everything due to whatever this is and I'm desperate for help. Doctors have gone so far as to say there is nothing wrong with me and that I'm just depressed. I've seen therapists who said I'm not crazy and anyone would be depressed in my situation. Please consider helping me this has been going on for a long time and I'm getting tired of fighting something with no name and no end in sight.