- CASE FILE
I was recently diagnosed with Blepharospasms, a progressive neurological disorder characterized by involuntary muscle contractions of eye.
ABOUT THIS CASE FILE
I am 46 years young and dealing with multiple symptoms and diagnoses. Most recently I was diagnosed with Blepharospasms which is a progressive neurological disorder characterized by involuntary muscle contractions and spasms of the eyelid muscles. It is a form of dystonia, a movement disorder in which muscle contractions cause sustained eyelid closure, twitching or repetitive movements. My eyes can't stay open when I want them to, like when I walk, or drive or work on the computer or phone. At unusual times I can keep my eyes open, like when I am talking or singing or sometimes coloring. Every 3-4 seconds my eyes shut for about 4-5 seconds without my control. I can't control my eyes when they do this. Can't open them when they are closed.
I have seen a neurologist and recently moved to a neuro-opthamologist. This doctor injects 14 shots of Botox into my eyelids, under my eyes and in my eyebrows. It is very painful. So far I haven't had a successful injection of Botox to help my condition.
There is currently no cure and no known cause either. I would love to see an end to this disabling disease.