- CASE FILE
Chronic sleep disorder for 2 decades with very little improvement. It had ruled and basically ruined my life. Lost jobs and relationships.
ABOUT THIS CASE FILE
2 decades of Hypersomnia with very little improvement, several sleep disorders that make me constantly tired & sleepy. Sleep 12-26hrs or more at a time. EXTREMELY hard to awaken. 2-6 diff times on 5-6 diff LOUD alarm clocks and will still sleep through them. It takes at least 1hr before I have energy to get out of bed and do things. Lost jobs & relationships. Slept through Christmas, family reunions, birthdays, appointments, work. Seem most alert between 9pm and 4am. I have chronic pain in joints and neck. Lots of headaches and migraines. The sleeping has caused me to have panic attacks & depression because I go to bed worrying when and if I can wake anywhere close to when I want and need to. It's a battle every day of my life. For 2 decades now my life revolves around my sleep. I don't go into a deep sleep until 4-5hrs after people say I am asleep. I've been diagnosed with delayed sleep phase disorder, post traumatic Hypersomnia (after a head injury that cause 6hrs of amnesia), circadian rhythm disorder, S.A.D, shift work sleep disorder. I have at times, slept for 2 to 3 days in a row without waking up to go use bathroom, drink anything, eat, or take meds. Every now and then I'll sleep 6-8hrs and feel good enough to get things done around the house but still have to force myself to do it, then I'll "crash & burn" as I call it. I'll go to bed and sleep for 15-20hrs then wake up tired, sleepy, and sore again. I've had blood tests and nothing in abnormal as far as a physical shows up even when I tell them what my issues are. They give me stimulants to help and it does help, for a few days then back to my old self again. Sleeping meds give me nightmares and make me sleep even longer. The same is with antidepressants. I've tried bright light therapy and like meds, it will help for a few days. I REALLY hope someone out there in this world we live in can help me. I'm in my 40's and want to live a "normal" life. I want to go to bed at normal nighttime hours and wake up in the mornings with or without alarms and feel refreshed and energetic. I want to enjoy my life or just feel like doing anything but sleeping or just sitting around the house. I'm down all the time because of whatever this is. I refuse to give up. I've already been told by the doctors that I can most likely won't ever hold a job again because you have to be there, be on time even working from home I have to be reliable and be able to do my job at certain times. I'm not lazy, far from it. Before I had the accident that may or may not be related, I worked 40-45hrs per week, went to college part time and earned an A.A.S. degree. I had a concussion from an accident that gave me amnesia for aprx 6-7hrs. When I sleep it's almost like a semi-coma. I just go into such a deep sleep that I can't hear the alarms, don't respond to someone shaking me. I've set alarms for 4:45am and wake up at 12:15pm with alarms blasting. I don't fall asleep when in a conversation or driving, nothing like that just sleep extremely hard and deep. Sometimes I feel like my brain thinks its 36-40hrs in a day.....I can wake up then after a couple hours start working around the house and be really into the jobs for 15-18hrs or so then when I do get sleepy, not tired but sleepy, I sleep for 15-hrs or more. I've been told that I snooze or silence some alarms but rarely do I remember doing it. I read an article once, something like "Life as a Hypersomniac" , that article sounded alot like myself. If I am a "Hypersomniac", I would like to know how I can function even close to normal. Thanks in advance for any help with this.