- CASE FILE
I'm a 39 year old wife and mother of two. I've been living with Lupus for 18 years now. The past 2 years my health has declined pretty bad.
ABOUT THIS CASE FILE
I'm seeking help because I feel all my Dr's are just treating the symptoms I'm having instead of finding the root cause. In the past 10 months I have been hospitalized 3-4 times due to some sort of bacterial infection and even Staph. They cannot seem to get the Lupus under control and continue to push harsh immunosuppressants at me, steroids, blood thinners, antibiotics, creams and ointments for rashes, pain killers to subside extreme pain. I'm going through constant headaches, inflammation of joints all over, extreme hair loss, skin rashes and what they call ulcers that cause itching and burning sensations on face, scalp, ears, hands and feet. They diagnosed me with Folliculitis and Cellulitis. I've been sent home with pic-lines three times just this year on heavy antibiotics, which I currently have right now. I have ulcers on my feet constantly and have not been able to wear any type of shoes for some time now. My face has been torn apart. I don't even recognize myself anymore. Most of my nose and side of face has a huge indent from loss of skin due to infections I have had. I continue to ask to see if there could be something more but all I get back is that it's complications of the Lupus and they just continue to add more meds. My eyes are constantly swollen from edema. It's so depressing at this point to even leave my house. The constant stares make me burst into tears. My marriage is falling apart, I have no social life, I feel I have fallen into a depression, all I do is cry and want to sleep. I work full-time and I have to really push myself to do it. We cannot afford for me to be on disability or to be out of work. Even now we are struggling kinda bad because I have exceeded my days early in the year due to being hospitalized so much so if I miss a day now I do not get paid for it. I feel like I am drowning and the stress of it all is overwhelming.