- CASE FILE
Severe allergic reaction to most clothing/fabrics and sources of UV light (sun/halogens/fluorescents). Makes everyday activities very hard.
ABOUT THIS CASE FILE
I have a combination of severe photosensitivity and allergic reactions from wearing clothing on my head, torso, and legs - making it very difficult for me to do everyday things - ranging from taking my kids to the park, to attending certain work events, to dressing up for a wedding or job interview.
I am a 46 year old male. Approximately 12 years ago, I began experiencing fatigue, joint pain, muscle pain, and pain at tendon insertion points, and was diagnosed with an undifferentiated autoimmune disorder. Subsequently, I developed severe photosensitivity, where exposure to any source of UV light (sun, halogens, fluorescents, etc.) would cause headache, fatigue, tightness in my chest, palpitations, mucous production, and an exacerbation of my underlying autoimmune disorder. Over time, my disease process evolved, and tests regularly show positive Sjogren's antibodies.
About 2 years ago, I began developing sensitivity to many fabrics (e.g. denim jeans); wearing them would create symptoms similar to sun exposure. After visiting Mayo, an allergist there recommended that I try to reintroduce denim slowly. Unfortunately, doing so severely exacerbated my symptoms, resulting in a more severe allergic reaction to even more fabrics (I can wear no slacks or jeans now - only shorts, and only select shirts that are both light and very soft), and new allergies to some foods (e.g. avocado). It also caused a severe flare of my autoimmune disorder, resulting in me having to take time off of work.
Symptoms are somewhat mitigated with extremely high doses of steroids; traditional immunomodulators only help with the more traditional autoimmune symptoms (pain, fatigue).