- CASE FILE
I have now had 3 pulmonary embolisms, over a 18 year span, and no known causes for them. They Say I don’t have a blood disorder or mutation
ABOUT THIS CASE FILE
My first PE happened when I was 22 years old. 4 days after my wedding. I lost 90% of one lung, it did heal after it just took a long time. The doctors thought it was from birth control pills. 18 years later I have wrist surgery and 8 days later I shower 24 clots in both lungs. Again they thought it was from surgery this time. 2 years later I shower clots again in both lungs (saddle bag) on one lung and it causes right sided heart failure this time. My heart does heal but it takes a while. All 3 times I was scanned to find where they were coming from, and each time they couldn’t find where. The doctors said my clots were so big and so many that it should show up.... but nothing! I have had 3 hematologists look at my blood work (and had multiple test ran) I even had them re-run everything this last time.... and nothing!! They say no blood disorder or blood mutation... I have a daughter and I wanted to know for her. My grandmother also had multiple PE’s.... but nothing!
I have never smoked, was a college athlete, was in good health...they said the exact opposite of what you look for this to happen.. I have never had any symptoms before the clots hit, just after.