- CASE FILE
I have Idiopathic Hypersomnia. My sleep latency is 1.5 minutes. I cannot function without stimulants. The root cause is unknown.
ABOUT THIS CASE FILE
Idiopathic Hypersomnia. Excessive daytime sleepiness. MLTS shows sleep latency of 1.5 minutes. Blood tests excluded underlying infections, lymes, thyroid issues, anemia. Blood panels are ALL within normal ranges. Night time sleep study shows NO significant apnea, no need for CPAP or bi-pap machine, no restless leg, no night terrors. I do not have narcolepsy because I do not reach REM within the range given for diagnosis during my MSLT. I have no cetaplexy, no sleep paralysis. I do NOT struggle to get up in the morning but I do crave sleep ALL the time.
15-20 naps in the afternoon are refreshing - and at this point mandatory. ALL meds given to me are off label, there is no medication approved for IH. I have tried Provigil, Nuvigil, Adderall, Ritalin... none of which really work, but am struggling through with Ritalin right now because it gives me the least side effects. Effective dose for me is not sustainable (too high) so I take short acting to keep me awake. I have severe brain fog in the afternoons and cannot drive without medication. I can fall asleep while driving and at stop lights, even medicated.