- CASE FILE
I’ve been diagnosed with a chronic kidney disease called FSGS. It’s a disease doctors have told me they have no idea where it comes from.
ABOUT THIS CASE FILE
I went to the ER one night not feeling right, I was around 14, and my BP was 180/118. Nurses kept retaking it, used different cuffs and still it was extremely high. From there we were told I had an chronic illness called FSGS, doctors explain it’s a somewhat rare disease that they aren’t sure where it comes from, what causes it, or how to really cure it. After many doctor visits every week it seemed, to every three months, doctors had explained within 4-6 years I may go into complete failure and will need to be on dialysis. Currently I’m 19 years old and have been on dialysis for almost a year, how I got to where I am right now was not expected to happen this soon. My kidney function was very steady and one day it dropped and I went into ESRD. Within a matter of about a week I was put into the hospital, had no time to really know my dialysis options so I had surgery for a hemo catheter and the next day had surgery for a peritoneal catheter. The first few month of dialysis were extremely hard on not only myself but my family, learning about everything in a short amount of time and the pain it all caused. Within about a month I had surgery to remove my PD catheter because it did nothing but cause pain for me, come to find out the tubing inside came loose and it was sucking on my liver. Since September of 2018 I’ve been on dialysis, I am still currently on dialysis and really trying to get a live donor processed for me. I was told I was the greatest candidate for a live donor, and I’m really praying sometime before the end of this year that I will get a transplant and no longer have to live a limited life at such a young age.