- CASE FILE
Experiencing repeated diagnosis with bacterial urinary infections: Klesbiella Pnemonae, Klesbiella Oxytoca, MRSA, E-coli
ABOUT THIS CASE FILE
In 2010, following 12 months of misdiagnoses, two seizures and comas, and the fracturing of three vertebrae, I was diagnosed with stage 4 cervical cancer. Following months of chemotherapy and radiation and a 16 hr surgery which removed 13 organs, I finally achieved NED status. Over the next two years, I endured 23 surgeries as doctors worked to save my kidneys and revise my multiple ostomies (permanent colostomy and internal neo-bladder) as well as remove and reinsert nephrostomy tubes/stents. It would finally be determined that the initial tumor had caused permanent kidney damage- the cause of seizures and comas due to poor function and elevation of bp; I am now battling stage 3 CKD. Over the years, I have, off and on, battled regularly with various urinary tract infections; MRSA the most common while battling cancer. This was my new 'normal' for the first year while seeking a diagnosis as well as the first 2-3 following treatment. Then for the following few years, I experienced a brief reprieve experiencing only 2-3 a year during that time. My luck, it would appear, has run out as over the course of the last 4 months, I have been diagnosed with no less than 5 new infections; the worst occurring being one which found me in the ER and its doctor prescribing me an antibiotic reserved for the rarest of infections and patients. In fact, over the course of two weeks, I have prescribed no less than 6 different antibiotics- two by way of injection. The only thing which has not been done was my readmission into the hospital for a vancomycin iv. To make matters worse, over this past week, while there is no current evidence of bacterial infection- no Klesbiella Pnemonae, Oxytoca, E-coli, or MRSA- I have experienced continuous nausea, vomiting and, for the past two weeks, severe abdominal pain. The last time I had such pain, I was admitted to the hospital with a gastric system shutdown and placed on a feeding machine due to ill-functioning thyroid. I know this is not the issue as I take regular prescribed thyroid medication. I have followed all of my doctors recommended instructions: maintain adequate fluid intake and emptying of the pouch as well as proper diet. I had begun to suspect possible metabolic acidosis, however, my most recent lab results indicate that my CO2 levels were at 23- within normal range with only my creatnine slightly above normal (within acceptable limits according to my nephrologist) and my GFR slightly low (again, I am told to be expected with all of my conditions and not too alarming) After nearly 9 years of continuous struggles and endless fights with so many various conditions, I am at my wits end and no longer feel I possess the energy necessary to endure yet another round of unanswerable diagnoses. The last time it nearly cost me my life as doctors- saying I 'looked too healthy to be sick' completely ruled out the possibility of cancer, opting instead to treat me for anything and everything but. I know I have conditions for which there is no 'cure' "cancer, kidney failure, thyroid disease, etc I just want someone to tell me 'why' and what I can do to improve my options for the best life I can hope for. For every infection I battle, I know I am putting my kidneys and, by extension my life at risk.