- CASE FILE
I have major joint and nerve pain with leukocytosis. No answers except fibromyalgia and community pneumonia and possible ILD.
ABOUT THIS CASE FILE
I would like help with diagnosing what I may have. I am ready to start treatment plan and live life. I have been diagnosed with fibro and chronic pneumonia and leukocytosis. They found scarring on my lungs, but all tests are inconclusive or negative for lung disease. And not let my pain control me. I have pain daily. Before I was put on gabapentin I did not want to get out of bed. Now it is manageable some days. My pain is from head to toe with forgetfulness and concentrating. I have pain in my lower and upper back. Muscle spasms and cramps daily. My elbows can not have any pressure on them. My face has painful acne /staph weekly. My skin hurts when touched. My fingers hurt to do anything, they prick and are numb. My right hip and knee go out often. And my heels burn and are numb. This has been very hard on me, financially, physically and emotionally. I can no longer work because I can't sit or stand very long. My anxiety is horrible due being sick all the time. I have been in the hospital and ER more in the last year than ever. I also have had custody of my 3 year old granddaughter since birth and I struggle to give 100% to her. Emotionally I am just over it and so tired of no answers. I have seen doctors since June of 2018. I went in at that time to a clinic diagnosis pneumonia and kidney infection. I have been sick since. October of 2018 I found a primary care doctor. I had several referrals. Rheumatoid, hematology, pulmonary, gastrointestinal, have seen a hematologist for my high WBC. She did a work up and only thing is being diagnosed with leukocytosis. I have been tested 2 times for lupus and rheumatoid arthritis both times they were negative. Have had x-rays on my hands and feet, no lesions. I have CT scans on my chest and abdomen nothing on the abdomen. They did see some scaring on my right lung. Referred to a pulmonologist he did a whole panel of testing from lupus to farmers disease to mold and possible poisoning. Nothing. They had a possible ILD diagnosis. Referred to a specialist she doesn't believe this diagnosis (this is a newer doctor to me still testing). I have had two EGD & manometry test. Nerve conduction and muscle test. Still no answers. I take gabapentin for my pain. Started this in april. I also take cymbalta and effexor for my anxiety, depression and pain. And remeron at night to help my anxiety and sleep. I haven't had any type of treatments of any kinds. I have mentioned to three of my doctors that eI am a dual pregnancy twin survivor and that it may be possible I could be a human chimera. Somethings in my life do reflect some traits. I just want to live a semi normal life, and get definitive answers on my health.