- CASE FILE
Since 2014, I've had 300 unexplained seizures, They end in October & begin again in March. I also have daily migraines & ringing in the ears
ABOUT THIS CASE FILE
Shortly after turning 21, in late 2014, I suffered the 1st seizure of my life. Since then I've had 300+ seizures and been transported to the hospital by ambulance 20 times. I get the tonic clonic/grand mal seizures that last 2 minutes. I also have daily migraine headaches, my ears feel stuffed up since 2014 and my menstrual flow is almost non-existent. There's no history of seizures in my family and I've had asthma all my life.
I've seen 7 neurologists in southern california. I've had 2 brain Mri's and 4 EEG's, those are the only 2 tests the neurologists will do, The mri's were normal, aside from some edema and 1 EEG showed generalized seizure activity. The EEG test and 1st mri were done right after I'd had a seizure. The doctors have told me I have epilepsy, which is defined as having 2 or more seizures. All my blood tests have been normal
I was put on Keppra an anticonvulsant in 2014, but I took myself off all medication last year, and since then have had far fewer seizures, about 5 this year. While on the Keppra I'd typically have 20-25 seizures at this point. Last year my best friend put me on fish oil pills, thinking it would counter the inflammation from the swelling that can be seen in my 1st brain mri. He was right, It stopped most of the seizures.
I feel I don't deserve this. I've never used illegal drugs in my life. I stopped drinking any alcohol at 21, as a precaution. I feel the doctors have not made an honest effort to find a cause. I believe it was the mirena birth control iud that brought this nightmare into my life. It secretes a cloned man made hormone into women's bodies that has a different molecular structure than the natural hormone it replaces and I believe all my medical problems can be traced back to that birth control device. So I had it removed in 2016 and since then my menstrual flow has remained almost non existent. I've experienced extreme weight gain, and while on the mirena for 3 years I began experiencing daily migraines for the 1st time in my life and I continue to have painful migraines every day, I feel the pain near my eye sockets and it's worse when I stand up. In 2017 I let my guard down and had 1 glass of wine at dinner, 30 minutes later I had a seizure and 5 more that night, 1 coming every 2 hours.
Lastly, thanks to my best friend keeping track of my disorder, he's noticed the seizures come only between March and October, I've been seizure free the past 3 winters. In my heart I know I don't have epilepsy, but all the doctors want to do is prescribe pills. The last time I tried a different anticonvulsant, I had a seizure 30 minutes later.
Now, I only have a seizure if I forget to take my dose of fish oil pills, but I still have the daily migraines, which are very painful. The doctors don't care