- CASE FILE
Stabbing headaches lead to discovery of 7 brain tumors. One year later believed to be rare Histiocytosis, Erdhaim-Chester's Disease.
ABOUT THIS CASE FILE
In May of 2018, my mother Theresa began experiencing debilitating daily headaches. Doctors performed both a CT and MRI scan which led to the discovery of seven brain tumors believed to be non-threatening meningiomas. After countless months of trying different medications, emergency room visits and iv treatments, the headaches were in fact getting worse. In February of 2019, an MRI scan showed the largest tumor had increased in size and surgery was then planned for March 22, 2019 to remove the tumor. On March 6th, Theresa was rushed to the emergency room for extreme abdominal pain. A scan showed there was a bowel obstruction and emergency surgery was planned for the next morning which also happened to be Theresa's birthday. This surgery resulted in Theresa having a colostomy bag as well as having her brain surgery postponed until May 8th. After the removal of the tumor, Theresa no longer experienced any headaches but just a couple weeks later, she was admitted back to the hospital for abdominal issues. Another blockage was found and on May 24th, Theresa had a second colon surgery. After a difficult recovery, she was discharged on July 11th which is when we were notified that pathology results showed the same rare Histiocytosis disease, Erdheim-Chester Disease, in her brain that had been found in her intestine. Erdheim-Chester's disease has only a few hundred reported cases worldwide and therefore, has no proven cure. Treatments such as surgery and chemotherapy have been shown to have some success but due to the nature of Theresa's health, doctor's informed her that her body could not tolerate such treatments. Unfortunately, her health continued to decline as she was taken back to emergency just nine days after being discharged. She was admitted to the hospital for blood in her colostomy but discharged the next day on July 20th as no source of bleeding could be found. Exactly one week later, Theresa was admitted to the hospital for blood in her colostomy bag once again. She stayed for a week and was then sent to a skilled nursing facility after no source of bleeding could be found. After just one night at the facility, Theresa was transported by ambulance to the hospital, where she remains today, for a large amount of blood in her colostomy bag . This has led doctors to the conclusion that solid food is irritating her colon thus making it bleed. Today, Theresa is now on a liquid-only diet and her health continues to decline as doctors continue running tests and working on a treatment that won't ultimately be detrimental.