- CASE FILE
Sudden onset of full body paresthesia, getting worse to where walking is now difficult, and in constant pain. No cause has been found.
ABOUT THIS CASE FILE
Sudden onset of bladder pain/ urinary frequency at age 38, checked for kidney stones with CT scan in ER but came back negative. Diagnosed with Prostatitis and given antibiotics that did nothing. 6months later developed sudden bilateral paresthesia in hands and feet. Next developed dysphagia. Given MRI with contrast of brian and full spine to rule out MS. Blood work is normal. Was given a standard Rheum panel to rule out Lymes, and basic autoimmune markers -- rheum panel came back negative. Vitamins were also checked and no vitamin deficiencies were found. EMG from Neurologists came back negative. Diagnosed with possible small fiber neuropathy, given a skin biopsy-- also negative. Given genetic test by neurologist to rule out genetic origins.. can't decipher the the gene test, but neurologist says nothing abnormal in genetic testing. Meanwhile, sx have progressed to constant pain, muscle spasms, muscle twitching, muscle weakness, constant need to urinate.. sometimes feel as if i can't walk. Pain is most intense in feet, but is felt throughout my entire body. I literally crawl up my stairs because the pain in my feet is so bad. Placed on Gabapentin and then Lyrica - both with minimal effects. I am getting worse and the doctors cannot offer a firm diagnosis, locate any etiology, or offer working meds. Only thing I can think of that adds to my case is the fact that prior to onset of sx I was taking Ambien (zolpidem) 10mg nightly for sleep for almost 8years.. sx developed while tapering off the meds (i was tapering off due to side effects), don't know if they caused neuropathy, but I have quit that medication and doctors do not believe it was the cause as the symptoms developed while tapering off of them and have progressed even 3 years after quitting. Like so many others - i am desperate for help for both me and my family.