- CASE FILE
Stuck in this body that’s deteriorating daily. I’m in constant pain that no amount of pain meds or therapy changes. New meds just the same.
ABOUT THIS CASE FILE
I have weird lumps all over my arms & legs, hands don’t open all the way, and painful to talk or just breathe. I’ve been in constant pain for 19 years now. I’m on strong pain meds but they don’t do anything at all to help me. The lumps were biopsied and came back foreign body granuloma. Even new meds don’t help at all, and the hospital has trouble controlling my pain with the strongest of meds. I’m miserable all the time, but I feel like my body is giving up.
I’m constantly inflamed, and bloodwork shows concerning levels of inflammation. I’ve been to specialist after specialist for the past 5 years, and all the doctors are either too overwhelmed with what all comes back wrong, or doesn’t care to try and figure it out. I have two rare genetic diseases Blau Syndrome & CMT2C, but nothing is being done or can be. I already had my jaw replaced bc there wasn’t any bone, and lost my eye 3 years ago to candida & possibly parasites. I’m terrified of what’s coming next. I just need help to figure out what’s missing to allow the meds help me, and prevent anything from happening to the other eye or worse. I’m lost, and really need help.