- CASE FILE
a year ago I began losing my vision fluid behind eyes and swelling in optic nerves the top drs in Seattle can’t help ! Can you ?
ABOUT THIS CASE FILE
This all started a year ago I woke up with what I thought was a sinus headache and I noticed my eyes were very blurry. I got up and around and figured it would just resolve on it’s own after some cold medicine and Sudafed nothing happened so I tried to carry on. A few days later my blurry vision turned into a distorted vision I looked up at the bars on the outside railing of my apartment and in my right eye they looked zigzagged ! Like I had some weird lens on my eye . It was scary but the pain was bearable. The next day I wake up unable to open my eyes or see the slightest bit of light without excruciating pain in my eyes and head it felt terrible! My husband drives me to the Er but they have no idea what it could be so I’m sent to the optometrist, she basically told me I probably have pink eye. But I knew in my heart that was absolutely wrong! So a few days later I went to a follow up and requested a dr with more experience this dr was immediately worried looking deep into my eyes . She seen swelling in and around my eyes fluid behind one and swelling in my optic nerves. She initially thought I had something called cat scratch fever since a blood test came back positive for that . A few weeks go by and I’m still in pain still can’t see can’t drive I’m frustrated! She decided this isn’t something she could figure out so she referred me 2 hours away to the eye institute of wa up in Seattle. Over 9 months I went to and from every appointment it was tiring I had so many labs drawn so many urine test . At one point they referred me to endocrinologist and also a kidney clinic. What ever I have is effecting more than my eyes . I had a spinal tap and kidney biopsy’s . All this with no answers .. I was given durezol an eye drop that helps the pain . I started at 60ml of prednisone and felt great I was back to my old self , but every time my dose go to about 10mg it went right back .. witch brings me to now , I finally got the drs to prescribe me some eye glasses(initially they thought this would just resolve on its own and I wouldn’t need glasses) and my rheumatologist started me on methotrexate witch hasn’t helped at all in the last 3months .. I see him tomorrow so I’m hoping for a break in my case cuz god knows I’m suffering every day from this condition. The sweating started along with all the other symptoms I mostly sweat from my head and I also get night sweats. My rash usually shows up on my face or neck and is just red blotches it’s not painful or bumpy. My bones hurt so bad every joint in my body has so much pain. And recently I was referred to a cardiologist witch I’ll be seeing soon cuz I had chest pain and PVC that lasted about 4days non stop . I’m only 28 and have a beautiful family 4 little ones and an amazing husband I’m scared I’m just gonna die on them one day 😓PLEASE HELP ❤️