- CASE FILE
deterioration of joints,severe pain, , trouble walking , swollen extremities, exhaustion, some sort of psoriasis in scalp, autoimmune issue
ABOUT THIS CASE FILE
am a 47 year old female, and have been dealing with medical issues my entire life. I was diagnosed with scoliosis, high blood pressure, and asthma as a child .
Over the years my scoliosis has progressively gotten worse, but in my early 40's I started having severe pain in my right hip. The doctor tried to say it was just arthritis at first. It progressively got worse. I was sent to an orthopedic who did MRI's, xrays, etc. on my hip and back. The findings said my hip was almost completely gone. Also it stated I have osteoarthritis, sciatica, degenerative disc disease, 5 discs were deteriorating between my L1 and L5, stenosis, & spondylosis. I was only 41 years old at the time. They sent me to therapy and told me to exercise and try to loose weight. My condition progressively worsened, and I was falling all the time. We finally scheduled the surgery when I was 43 yrs old. The doc told me, after the surgery, that he was very worried because when they went in to replace my hip that it was completely gone. He explained how he extended the hip out to make sure it would not dislocate, since there was nothing to hold it in the socket. I could not walk or get out of bed for about a week, and I was transferred to rehab for a month.
While i was at rehab, i was having trouble pushing my self up . My right shoulder felt like it was going to dislocate, which it did a lot when I was younger. They did an xray, and told me my shoulder had some sort of rotator cuff issue. They tried to teach me how to tape it, to keep it secure.
I went for my follow-up to my orthopedic for my hip. We spoke about the issue with my shoulder, and I also told him i was having pain in my right knee. He xrayed both, and came in with an upset look on his face. He said your shoulder is completely gone, nothing left. My knee will need to be replaced too. He told me to come back when I was ready. He explained that therapy would make it worse .
About a year or so ago, I started exhibiting signs of psoriasis(possibly) on my eyes and on my scalp. I also developed an uncontrollable itching on my right palm and arm. I went to see a dermatologist, but no real diagnosis. My primary doctor thinks it was possibly psoriatic arthritis, but tests said no o both rheumatoid arthritis or psoriatic. I also was having major issues with my bowels, blackish painful stools in mornings, every morning. I went to a rhumatogist and he thought that it maybe an autoimmune disease, he stated a lot of them are unknown or undiagnosed yet.
I also have had issues with swelling in the leg that I had surgery on for my hip. Also discoloration in my skin on the same leg.
I think I could keep going, but I am crying as I am typing this. I am becoming more and more hunched over. Also my right foot needs surgery due to bunions , but I am really unsure that is what is wrong . My foot is becoming harder and harder to walk.on .
I do not have all this money they want for all the tests they want to do, and I certainly can not afford all the necessary surgeries. I keep telling the doctors that this is not normal. I am too young to have all my joints deteriorating. I feel like no one is listening.
I am the sole bread winner, and I have 2 beautiful children who are 11 and 13. I pay for our medical insurance out of pocket. It is very expensive, and it is not very good. My son has SVT, so I have been putting his issues and surgeries 1st of course.
PLEASE HELP ME. I am begging you. I want to be there for my children as they get older, and I just want my life back. I was stopped by a lady the other day in the supermarket, because I was hunched over in pain pushing the shopping cart. She said I feel so bad for you, and i am going to pray for you. I started crying uncontrollably in the supermarket. I do not want people to look at me with pity.