- CASE FILE
Back in 2015 I was diagnosed with syringomyelia and have a syrinx from T9 to Conus. I’ve been suffering from constant back pains for 10yrs+.
ABOUT THIS CASE FILE
I was diagnosed in 2015 with syringomyelia and have a syrinx in my spine from T9 to Conus that’s 2mm at its widest point. I’ve been suffering from constant back/neck/joint/nerve pain for over a decade with absolutely no help from multiple specialists and PCP doctors. My whole body constantly hurts, all my joints feel like they need to explode but my back is the worst. Everyone I’ve seen says that my syrinx is incidental and isn’t causing my pains yet no one can ever tell me what is or they assume it’s just not real. I’m absolutely sick and tired of being swept under the rug and being told there’s nothing we can do for you. I’m only 35yrs old and can no longer do my job and my days are so hit and miss of how I’m going to feel that I can’t consistently work. I’m at a loss as what to do because no one hardly seems to know what syringomyelia is because it’s pretty rare from what I’m told yet it affects thousands of us and we are all going through the same troubles of not getting help from the medical community. It’s utterly ridiculous that in the last 5 years I still haven’t found anyone willing to take me serious.