- CASE FILE
Chronic pain/diarrhea from complications of Crohns Disease. Last 4-1/2 years suffer from complication of gallbladder removal.
ABOUT THIS CASE FILE
I’ve had Severe Crohns disease for 40 years. Two years ago, my gallbladder ruptured, I had emergency surgery and I’ve been throwing up since. I’ve dealt with chronic pain for most of my adult life, but this is completely debilitating. I have a constant burning in my stomach, so on a daily basis, I “almost” or do throw up several times a day. I’m unable to eat which has led to my weight loss. This is on top of my Crohns Disease that WAS in remission, but now after several tests, show I have another stricture. This burning/massive pain eventually leads me back to the hospital. The symptoms are: the inability to stop throwing up; my BP which is usually 101/71 spikes to 197/98, pain is intolerable, burning, stabbing, and I’m unable to communicate with hospital staff. I usually end up in the hospital on heavy doses of antibiotics which makes me worse, but the pain/nausea is managed until discharge averaging 4 days in the hospital every 4-6 months.
I’ve had endoscopies, it shows reddening in my stomach. I finally got an appt. with GI specialist at USC and she gave me antibiotics to promote good bacteria into the gut. It helped, but symptoms persist. I’m currently taking pantoprazole 40 mg., alternating acid reducer/acid controller as well. My CD has left me with 2 Re sections and 1 strictureplasty which has led to short bowel syndrome and malabsorption of fats. I was in remission for 6 years taking Stelara 90 mg. Every other month, but the medi-cal I’m on doesn’t care about continuity of care and denied my stelara twice which caused me to develop antibodies and I’m out of remission. Prior to Stelara, NOTHING worked for me and I’m highly allergic to most of the biological that they treat CD with. Now with the gallbladder removed, I have constant diarrhea even though I take bile binders. I have to wear a diaper to bed, having several accidents whether I eat or not.
I’m at my wits end, I contemplate suicide because my suffering has gone on for years. I want to live, please help me!