- CASE FILE
In 2015 I sneezed and tore open my dura mater causing spontaneous spinal CSF leaks. A diagnosis and cure would be a challenge!
ABOUT THIS CASE FILE
My first CSF leak occurred when I sneezed. I now know that calcified herniated discs cut open the dura mater on my spine. I have leaked 6 times and my leaks have been sealed with fibrin glue patching and spinal surgeries. I travel for medical care as there is a serious lack of current, accurate information in the hands of medical professionals. Like most people with CSF leaks, I was misdiagnosed and dismissed. I had excruciating headaches, blurred vision, distorted hearing, sounds and light sensitivity, nausea, vomiting, body tremors, tachycardia, and varied neurological dysfunction. I eventually found a doctor who was able to give me a diagnosis, but finding a cure would prove very challenging. I am currently being treated by a team at Duke, I am sealed, and aware that I am VERY fortunate! How many people are suffering without the cure I've found? The only thing worse than having your "brain juice" leak out of your head, is having no one to understand or help you! CSF leaks need to be on the radar as a possible cause of incurable headaches.