- CASE FILE
I am a nurse and was considered the Case Study of my class, MD's have said maybe rare genetic condition, no answers!
ABOUT THIS CASE FILE
I am seeking help as my physicians are at a dead end and not sure how to direct other than saying go see a researcher or look for a genetic cause. I am only 47 and have had medical conditions of an 80 year old since my 20's! I have constant recurrent shingles and am only 47 (every 3 months) on my face and it is painful and disfiguring. I have a variety of nerve conditions like Trigeminal Neuralgia (Right side) that required brain surgery and MVD due to vascular malformation in brain and have the condition on Left side as well. I have a presumed congenital heart defect - Large atrial septal aneurysm, variety of nerve and connective tissue tears, joint pain and increasing joint weakness and have pain every day in face, neck, back, ankles and intermittent chest pain and coronary vasospasm. I have had back surgeries shoulder surgery, need hip surgery etc.