- CASE FILE
I need HELP!!! I have been ‘diagnosed’ with over 26 things and take up to 38 meds a day! I’m a mess & we still don’t know what’s wrong!!!!
ABOUT THIS CASE FILE
I have been trying to figure out what is going on with me for 20 years now. I started being diagnosed with pain related conditions, different mental illnesses, I have major lung issues-an interstitial cyst in L lobe, pulmonary hypertension, asthma and COPD. I have a heart condition that I can’t remember the name of. Recently I was diagnosed with LTBI and after doing research found out something interesting: last year, July 2018, I had a hysterectomy. Went under expecting a Laprascopic (sp?) Trans-Vaginal partial Hysterectomy because I had a grapefruit sized tumor on my uterus. I woke up having a full abdominal Hysterectomy due to undiagnosed Endometriosis that the doctor thought was cancer. Which having long-term LTBI can cause. I’m an IVDA with almost 5 years clean (on Suboxone) and probably caught it back then. I’m also needing my R knee replaced and probably my L one also. I suffer chronic yeast infections (even though I cut out bread, potatoes, sugar and soda when I found out I was pre-Diabetic). I suffer Edema of my calves & ankles & wear compression stockings. I was previously diagnosed with Sleep Apnea but since losing weight no longer suffer from it, but I do have to sleep with Oxygen due to Sats at high 70’s-low 80’s during my last sleep study. Also quite recently I was diagnosed with Stage 3 Cystocele (bladder prolapse). Most recently I have been having flare-ups where my shoulder joints & hip joints feel like they have a fire, a burning pain or a sunburn inside them. And they are swollen & hot to the touch. These flare-ups recently started within last 6 months and occur every time the steroids are out of my system. My wrists, ankles, fingers & toes have a constant cold aching pain. When I have these flare-ups I get a swollen, tender & hot spot on my head above my ear which feels like it is pressing on my head. I am in constant pain-everywhere. Im having trouble sleeping-at night the muscle in my calf will spasm and when I flex my foot to stretch it this causes the muscle on the side of my calf spasms & when I point my toe to stretch that muscle my calf muscles spasm again. My pelvic girdle aches, when I stand up or sit down the muscles in my sacrum spasm. My upper arms, butt & thighs are constantly sore. I’m constantly tired, fatigued & feel malaise. I have low grade fevers that come & go & I NEVER feel ‘good’. I always feel sick, worn out & unable to live my life. I’m so overwhelmed & tired of blood tests & of seeing doctors (have probably seen over 20) & now it looks like I’m stuck!!! I live in Humboldt County, CA & we don’t have specialists here & it is difficult to travel out of the area to see someone (no car no $). I’m convinced that I’m suffering from some kind of Autoimmune Disorder. (Other things are-Both my legs had the saphaneous veins cauterized due to leakage, constantly thirsty, dry mouth, feels like grit or sand is in my eyes, weird taste in my mouth, & even though I take some heavy sleep meds-I don’t sleep well). I can’t enjoy life at all. Sometimes the pain is so bad that it hurts to lay down, it hurts to sit & it hurts to walk. In the mornings I am so stiff it takes over 2 hours of movement to get rid of the stiffness & if I sit down for even 10-15 minutes I get stiff all over again. But it hurts to stand for more than a few minutes at a time. I use a walker to walk with but wind up sitting down every block because I am so short of breath & have to hit one of my inhalers. I can’t stand the heat and I break out in profuse sweats constantly. I have tried acupuncture, massage, myofascial release. I have shortness of breath and my normal oxygen saturation is 91-92%. I live on Pyridium (Phenazopyridine) because it hurts so much when I pee-like I have a horrible UTI(to the point where I scream)-even though urine tests come up negative. I can’t do the things I always loved doing: baking, cooking, quilting, sewing, arts & crafts, even just going to coffee with friends. I’d really like to know what is going on!! I feel like all the meds I’m on (take up to 37 a day) are just treating symptoms & not the disease. The meds I’m on don’t even help with the symptoms as well as I would like them to!!! I feel I not only need to figure this out but get on appropriate medications.