- CASE FILE
Hello, I'm a 38 year old female that I had my first TIA when I was 19 years old.
ABOUT THIS CASE FILE
As I said, I had my first TIA at 19. It hit the left side of my face and down my arm. They really didn't know what to do with a patient so young having a TIA. I felt like they didn't believe me with what was going on. But it showed on the C-scan. I was told to take an 81 mg Aspirin a day. When I was 20 years my husband and I decided to start trying for a baby. I found out I have endometriosis. I had to have multiple laparoscopies and they gave me a six month window to have a baby. I had my second and third TIA at 21 years old during pregnancy. My second TIA also hit the left side of my face and down my arm and stopped at my heart. I was 6 weeks pregnant and they told me I would have to abort my baby. I chose not to do that. I was put on bed rest. They consulted an oncologist. It was then when they told me I have Lupus Anticoagulant and a Protein S deficiency. They put me on Lovenox Injections since I was pregnant. Also, to continue with my Aspirin. My third TIA happened when I was 6 weeks to my due date of pregnancy. This TIA hit the whole left side of my body. I am still on bed rest at this point. They want me to continue with all the same medications. After I had a baby boy, that is completely healthy, they put me on Coumadin and to continue the Aspirin. Then I had my fourth TIA at 32 years of age. This hospital visit they decide to do what is called a bubble test and I failed that test. I learned then that I have a whole in my heart. December of 2013 I have robotic heart surgery to fix the whole in my heart. They told me that this would fix the TIA problem. With a TIA you do not have residual effects from the TIA’s. So therefore I have control of my left side.
Some time between 21-32 years old I was diagnosed with Rheumatoid Arthritis. I have lots of pain in my joints: my shoulders, elbows, hips, and knees. I have a hard time moving a lot. I wake up stiff and it takes me a couple of hours to get around. I can do the same thing every day and some days I can't even get around to doing it our I run out of energy to be able to do it . I was seeing a Rheumatologist in my hometown but after my fourth TIA my Oncologist recommended me to see another Rheumatologist in a bigger town in Dallas. He gave me a whole list of diagnoses. Helicobacter Pylori Gastrointestinal Tract Infection, Reiter’s Disease, hypothyroidism, Vitamin B & D deficiency, Autoimmune Disease, Lupus Anticoagulant Disorder, Antiphospholipid Syndrome, Adjustment Disorder with Depressed Mood, Chronic Fatigue Syndrome, Raynaud’s Disease, Gastroesophageal Reflux Disease, Acute Gastritis, Systemic Lupus Erythematosus, SjoGren’s Syndrome, Rheumatoid Arthritis, Seronegative Rheumatoid Arthritis, Pain in shoulder, elbows, hand, hip, knee, ankle and foot,neck, lower back, Spinal Enthosopathy, Lumbosacral Spondylosis without Myelopathy, Spinal Stenosis of Thoracic Region, Enthesopathy of Hip Region, Myositis, Fibromyositis, Osteoporosis, Disorder of Bone and Cartilage, Osteopenia, Precordial Pain. I was put on many new medications.
I have had trouble walking and moving around. I have been in a wheelchair, used a cane and a walker. Today I am not in any of those.
My rheumatologist retired in 2016 and I had to find a new doctor. This new doctor says I do not have any of these diagnoses. That nothing is wrong with me. I have now moved on and see a Bio-Science doctor. He is running all new test and does believe a lot of these diagnoses are true. His diagnosis is Connective Tissue Disease. That is where a lot of these diagnoses are lumped together.
In 2010 I had an infusion done in my back for the endometriosis. They went in and blocked the nerve ending for the endometriosis.
In 2014 I found out that my blood looked great but I was using a walker to get around. My oncologist said he could no longer see me. They said my Lupus Anticoagulant and a Protein S deficiency were better. I was off coumadin buy they still required that I now take a 325 mg aspirin a day.
May of 2019 I had a 20 lb fluid weight gain in 2 days. They are still trying to figure out what this is caused from. I still have swelling in my legs and feet.
I still continue daily with the pain. But I make myself get up everyday and keep going. Dealing with this is an everyday struggle. That is why I have depression and I see a counselor. I have a very supportive family! They all know that some days I just can’t and those days they lift me up more in prayer.