- CASE FILE
34 year old woke up one day with onset of many symptoms ranging from migraine than has not gone away for 3 yrs to mind fog and much more.
ABOUT THIS CASE FILE
I am 34 years old. I am a married, father of 5. I am from Brazil Indiana, a small farming community between Terre Haute IN and Indianapolis IN. I am a corretional officer at a state ran correctional facility. Life was good, I had a great position at my job, my wife and I had just had our first baby together (she has 1 son from her previous relationship and I have 3 children from my provious relastionship) and then it happend. On April 7, 2017 I woke up with a migraine and horrible vertigo( sound,light,nausea,dizziness,and pain). I had migraines before so I figured I would just sleep it off and lay in bed until it was gone the next day. I woke up the next mornning and there was no change, I was a bit worried but I thought maybe I was getting older and it was going to take a bit more time to get over it. The third day rolled around and there was no change so my wife insisted I see the doctor. I ended up with his NP and she ordered a MRI but I ended up with a CT scan. It showed something on my brain so they did an MRI (I have had MRI before for other reasons) The MRI showed a archnoid cyst in the center of my brain. I was set up to see a Nurologist and Nuro surgen. While I waited the migraine persisted I started to have problems like :
>Numbness to the left side of my face and body
>Vertigo at times
>Loss of concentration
>Forgetfullness (very bad)
>Neck and back pain.
>Inability to find correct words
>Suddenly falling asleep while biting my tounge
>Shortness of breath
>Pain that never goes away
I have seen a total of 15 different doctors ranging from family practitioners to neurologists, to neurosurgens, to pain managment doctors, chiropractors, physical therapists, counsellors/therapits and accupuncturists. I have been to my local hospital, a hospital in Indianapolis, the Diamond Headache Clinic in Chicago, as well as the Mayo Clinic in Minnesota. I have been given every medication available for migraine/headache pain. I have been hospitalized on four different occasions with no relief. I have been on histamine drips, had a spinal tap, had botox and accupuncture, and chiropractic care.
I had a small amount of relief when I was given dilaudid after the spinal tap resulted in a spinal headache on top of everything else. I tried Amovig and now am on Ajovy with little to show for it. I do NOT however want to be on narcotics or any kind of heavy medication! I do not want to get addicted to pain killers.(Even though I am poping tylenol like they are M&Ms to try to cut down the body pain and my Dr. told me to stop using IBprofen because it was causing stomach issues.)I have had one Dr. tell me "You will just be disabled the rest of your life", one Dr. say I cant figure out anything more go back to your family Dr., One Dr. thought it was the cyst in my head but couldnt find a surgeon to take on the case, One Dr. tell me I have 3 types of migraines at once, One Dr. told me intractable Migraines with no sign of relief, One said Fibromyalgia, and some that had no idea. They did find a small anyurism while at mayo and some degenerated discs in my upper spine/neck, and also some heart abnormalities that they didnt elaberate on with me. I have recently been having chest pain that puts me on the floor and going to see a cardiologist for. I have been on disability for the last two years as my condition has rendered me unable to preform my duties as a correctional officer.
Not only am I unable to work the job I love, I am no longer able to be the father and husband I want to be.I feel as if my life has been stolen from me at only 34 years old. My family Dr. is trying to figure out somthing for me and help me but she is shooting in the dark. I am truly at a loss and at the end of my rope with this. I am humbley asking for your help to try to find this out. I cant live my life this way anymore at least no truely knowing what it is. My life is not my own anymore this disease, sickness, THING! controls all i do, from how I sleep, eat, spend time with my family and even doing dishes.