- CASE FILE
30 yo with debilitating neuro symptomsMy brother had debilitating symptoms of dyautonomia. Extreme heart dysrhythmias/unable to eat/tick
ABOUT THIS CASE FILE
In December 2017, my healthy 28 year old brother was working and full time, labor intensive job and raising his son. His symptoms started with an irregular heart rhythm that caused chest pain that sent him to the ER. He was “diagnosed” with anxiety and reflux and sent home only to have several more episodes which prompted them to remove his gallbladder. His symptoms continued to worsen over the next few months with increasing heart rates, low blood pressure, and spells of dizziness, confusion, anxiety, vision loss, and brain fog, significant weight loss, diarrhea, constipation, gastroparesis. His NP ran a battery of tests during this time, including Lyme, which came back inconclusive. He was ultimately diagnosed with dysautonomia. While researching this diagnosis, we found that it is typically triggered by some type of event. He had a tick bite in Nov of 2017. The inconclusive Lyme test as well as that bite led us to having and test for Lyme thru a German Lab, Armin. This test came back positive for multiple tick borne illnesses and well as EBV. Since then, he has treated with antibiotics off and on for over a year, including 30 days of PICC line antibiotics, with no improvement. He feels most of his symptoms are due to the dysautonomia, but none of the doctors here seem to know how to help him. His heart is a constant arrhythmia, he can’t tolerate food, stays sick with a sinus and ear infection. His life is on hold and he can’t be the father he wants to be due to this debilitating condition. Please help! How can he get better? Is it really Lyme and co-infections that caused this? Could his testing be wrong? Is this an autoimmune disorder if some kind? Or is ALL of these problems from dysautonomia? If so, how does he get better?