- CASE FILE
17 year old gymnastic champion's career ending injuries spirals into uncontrollable Cyclic Vomiting Syndrome and becomes totally disabled.
ABOUT THIS CASE FILE
Cyclic Vomiting Syndrome Episodes:
• Episodes are more common in the early morning and/or after food or activity but can and do occur anytime during the day or night. Anxiety and excitement also cause episodes.
• In addition to stomach migraines, I have occasional head migraines. Explosive diarrhea often accompanying vomiting -- or in place of vomiting -- now occur.
• Prior to becoming sick, I sense an episode is about to begin.
• I usually have excess sinus drainage, vertigo and motion sickness are present.
• My pallor changes to chalky white, body temperature is volatile.
• My brain seems to be overloaded, filled with white noise and he cannot concentrate or think.
• I feel like electrically is running through my veins.
• Vision Disturbances: Eyesight changes and begins to vary from eye to eye, one clearer than the other. Vision seems to be viewed through static.
• I experiences seizure-like symptoms during episodes that man times cause his face to tingle and droop. Formulating speech is difficult and slurred. Sometimes I drool and I am unaware of his surroundings.
• Severe: stomach cramps, stomach pain, nausea and vomiting or gastric-emptying like diarrhea occur. I often feel like I will die during episodes. Disassociation with objects, places, and simple physical tasks like using a fork are present.
• Hours are spent in the bathroom vomiting, curled up in a ball or in a warm shower which the sound and warmth offer refuge. Front temporal lobe massage sometimes seems to help.
• Occasional heart pain is present, unclear if could be from ulcers or medications.
• Eating food and even drinking water causes a gag reflux and a volcano like eruption of acid.
• Stomach pain location appears to be primarily located in the middle of the abdomen from just above the belly button to top of rib cage. However, sometimes the pain covers a broader region from the just below belly button to the top of the rib cage.
• Episodes range in length from a few hours to a few days. Recovery generally takes 12-24 hours. However, mental clarity may take longer causing things to constantly be misplaced or lost.
• Cognitive impact – Memory recall immediately and severely impaired. Forgets how to spell words, eat with a fork, etc.
Additional Information and Impact of Severe Chronic Illness
• When not sick, I feel normal and cannot envision the scale and intensity of his former sickness. If fact, I often remember very little of the episode.
• However, the toll of CVS is ever-present. I have severe chronic fatigue, anxiety, PTSD, and depression over my illness and the burden I feel to family and friends. I am unable to complete college or be employed.