- CASE FILE
31 years old unable to tolerate most foods or medications. MANY doctors and specialists are stumped. Multiple tests run no diagnosis.
ABOUT THIS CASE FILE
I am seeking help here at the urging of my wife, other family, and friends. I have daily pain, nausea, and discomfort in various parts of my body and it seems to migrate. I lost all my teeth, went bald early, have had both lungs randomly collapse due to spontaneous pneumothorax, I have extremely low weight and energy levels, I have episodes of feeling like I have a fever when I don't have a temperature, I have paradoxical reactions to most medicines, and a continuing list of other annoyances. My daily life is greatly affected as I cannot work a traditional job most of the time, I eat the same limited diet in very small portions consisting of mainly carbohydrates, I am unable to enjoy family events like Christmas or Thanksgiving as I can't eat any of the food and constantly have to be aware of who is feeling unwell as to not exacerbate my issues. I have developed a fear of getting sick and being in public. I have lost friends and family to lack of understanding or compassion, I have gone into massive debt by inability to work, years of medical testing and doctor's and specialist visits, hospitalizations, etc. I have consulted with doctors, nutritionists, gastroenterologists, therapists, naturopaths, surgeons and all of them seem stumped and have been unable to offer me an accurate diagnosis. I have been offered many medications and I seem to respond best to intravenous injections and very poorly to anything taken by mouth. I have undergone colonoscopy and endoscopy which they found lots of inflammation and they found and removed polyps in my terminal illeum. X-rays, CT scans, blood tests, and other tests have yet to provide anything useful. Self taught mindfulness and meditation seem to be the most successful treatments as of yet although incomplete by a large margin. Testing has mainly ruled out Chrone's and SIBO and symptom severity and variation seem to be too advanced for IBS. If I can get a diagnosis then I can begin to understand and cope with this ailment and perhaps even begin to regain portions of my life.