- CASE FILE
4 years, countless tests, countless doctors. Consensus is “we’ve exhausted all options”.
ABOUT THIS CASE FILE
After four years of countless tests and doctors, there’s still no identifiable cause of my health problems.
There are a few things that every doctor can agree on. You’re a confusing case, there is a main cause of all of your symptoms, diabetes is not the root cause, and there is nothing more we can do.
I’ve had a hand full of symptoms for twenty years. Nothing major at first. Heartburn, fatigue, muscle fatigue, headaches. Nothing that was life changing.
About 7 years ago things started changing. Unable to tolerate heat which ended with heat stroke episode and rashes. High blood pressure, hypothyroidism, worsening of migraines, and anemia.
Then four years ago, my life changed. Bilateral poly neuropathy large and small fiber. And my ongoing stomach problems had worsened to the point I was having more issues eating regularly. My blood sugars were erratic and hypoglycemia was causing a lot of symptoms. I was clueless and shocked when they told me I was diabetic. I don’t have a family history and I didn’t have it during my pregnancy.
Through the years, I’ve battled bilateral foot drop, muscle fatigue, constant severe cramps in feet and legs, esophagus spasms, gastroparesis, regurgitation, hives, skin discoloration on legs and feet, severe fatigue, hypoglycemia episodes, weight loss, anemia, paralyzed toes, tennis elbow, bursitis in hips and shoulders, arthritis.
My life has changed. I am unable to stand, walk or sit for periods of time. I am unemployed and have daily fatigue. My health has caused anxiety and depression. My diet consists of about five items that I eat every day.
I’ve seen local doctors, specialists, traveled out of state, had ER visits, tried acupuncture, yoga, physical therapy, meditation, medications, and a hundred cure all products.
I’ve had xrays, mri, blood tests, spinal tap, scopes, gastric emptying tests, rectal tests, nerve studies.
The positive is that I think we’ve ruled out a neurological cause. Though my family still believes there might be a muscular cause as a DNA test was inconclusive and we were told I wasn’t diagnosed because they had just changed the criteria.
My rheumatologist has dx me with connective tissue disease as well. I’ve had a history of bloodwork that isn’t normal but not considered extremely abnormal either.
So, when the doctors say, there’s nothing more we can do. What am I to do? Is this my life? Is there no hope for recovery, new treatments, studies, etc?
Living chronically ill is a lonely isolated life. I fight every single day to keep going, stay positive, and continue working with my doctors.
Though I’ve wanted to give up a thousand times, I won’t. I’m my own advocate. I will continue fighting, educating myself, and looking for that one doctor. The one that will help me.