- CASE FILE
53 yr old female suffering from nerve and muscle pain low oxygen psuedo tumor losing eye sight and bowel control. No diagnosis for 17 yrs
ABOUT THIS CASE FILE
After 2 surgeries to remove fibroids in uterus a total hysterectomy was done in 2001. In 2003 started feeling fatigued and leg and arm pain began. Same year started falling and dropping drinks at work as a toll collector of 15 yrs. Doctors found low blood hemoglobin 5.2 low iron and began intravenous blood and iron and placed me on continuous oxygen. Next two years pain increases blood levels up to 8 but iron not responding and breathing not improving as doctors expected to have better oxygen levels once blood increased. Procrit shots and iron had not helped iron levels as difficulty breathing hospitalized me and several scares putting me in ICU several times. I was seen by over ten doctors and a neurologist performed nerves tests two muscle biopsies while stomach tests, breathing tests and various blood tests performed I was undiagnosed and once stabilized breathing released from 4th hospital stay in 2 years but could not return to work this time with severe pain low oxygen and inability to walk far. On bed rest under doctors care for next 3 years many tests performed and still I continued to worsen. Winters were difficult if I caught a cold I ended up in ICU. In 2009 my husband and I tried UPMC when rushed to er and again I ended up quarantined due to unknown lung infection and ended up in ICU for over 5 months. A psuedo timer in head found I was now a sleep apnea patient I am a astrology patient had yet another biopsy on muscles and a lung biopsy twice attempts stopped for fear of my breathing. I've been checked for rheumatoid arthritis had markers that showed up for lupus, steroids ms and cancer but remained inconclusive for all three. I was sent to eye specialist to treat psuedo tumor and released from Shadyside Hospital again inconclusive on diagnosis. My weight increased from 219 to now 390 and my next choice is Cleveland Clinic or John Hopkins. My family are begging me to go. I am so exhausted of tests and being prodded and poked I just want it to be over. I am scared I may run my car over a cliff my husband and sister faithfully at my side and transporting me everywhere is possibly the only reason I'm here. I watched show and did not know my husband called in so here I am surprisingly reaching out again.
I dont like pictures but I sent one before marriage and one recently of my husband and I and I couldn't stand for that. Please Please help me.