- CASE FILE
I have a rare eye disease that has destroyed my retinas and because I can’t see I have migraines all the time. I’ve had this for 29 years.
ABOUT THIS CASE FILE
I have scars on both retinas and was diagnosed with histoplasmosis and Epstein-Barr virus many years ago after going in a Bat Cave in Barbados but my current retinal doctor said if that’s the case it’s the worst shoes ever seen. And she is one of the top retinal specialist in the Boston area. I currently have no central vision and can’t read and this disease is progressive. So of course I have migraine, which is treated with Botox, Imitrex and Emgality. Lately I’ve had short term memory loss, neuropathy, lethargy to the point I couldn’t even walk today and had to cancel my doctors appointment. I also have sciatica, with no feeling in my entire right leg and Coccydynia, and low back pain ( i’ve had two back surgeries and numerous steroid injections). My sinusitis are an issue,I’ve had four surgeries for that, and countless sinus infections. The ENT doctor said I just produce thick mucus and he is one of the top doctors in Boston too. And I’ve seen so many doctors since this started in 1990. I also have hyperthyroidism and fibromyalgia and lately I’ve been stuttering intermittently. I have more medical issues but I want to get to the fact that I am seeking an answer for my eye disease so that my migraines will get better. I was told I need a retinal transplant but I don’t know if that’s true and if so I’ve been waiting 29 years. Because of Epstein-Barr virus I have a compromised immune system and I just have way too many things wrong with me. I really don’t have a life. I go to acupuncture every week and I go to doctors appointments and that’s pretty much it and I’m really tired of it. I just want the pain to stop and to be able to see. I am extremely depressed ants unfortunately I have had suicidal thoughts. Every morning when I open my eyes I feel pain until I close my eyes at night. What kind of life is this?