- CASE FILE
Lichens Sclerosus - the silent shame ridden destroyer of women's sexual health which can also lead to vulva cancer.
ABOUT THIS CASE FILE
Disappearance of Clitoris. Shrinking of the clitoris. Disappearance of the Labia Minora. White patches. Thin cigarette paper like skin on vulva. Prone to cracking, bleeding, sores, chronic itching. Affects men too.
It's an incurable progressive illness. It starts slow and sometimes asymptomatic. It progresses until you have nothing left but pain and itching and in some cases cancer.
It is known to be genetic, auto-immune with environmental factors. Genetic determined antibodies affect T cells which are hyper reactive to antigens - which antigens is unknown.
Doctors only have a high potency, topical corticoid steroid to treat the symptoms. It's called clobatosol. It destroys women's adrenals. In some cases causes glaucoma and osteoporosis. It's not meant for lifetime long term use.
Women are doing crazy things to get off clobatosol such as bathing in Borax and drinking Borax.
There is a book written by Ginny Chandoha called Lichens Sclerosus - which is the handbook for LS suffers. It requires daily hours of devotion and life altering changes to lifestyle to even keep some of the symptoms at bay.
Due to the shame and embarrassment of this illness many women apply the clobatosol and then go into adrenal fatigue. Most doctor's have zero answers in their toolkit.
It's a multidisciplinary illness as it requires your Gyno, a dermatologist, a Vulva and Vaginal Disorder specialist. I've gotten 4 biopsies. I've participated in clinical trials for cures.
I've tried the Mona Lisa Touch laser, I've tried soaking for a year almost daily in Borax, I've tried clobatosol. I've made diet and lifestyle changes.
I am still a young-ish person. It's ruining my quality of life.
Here is the best description of Lichens that I have found, I can't seem to link it in the Multimedia Upload so I am linking it here:https://www.bsccp.org.uk/colposcopy-resources/the-lichens-of-the-vulva/?fbclid=IwAR2-BfRP-VwngM4FvNugmb1mo1hu8WeW8V4zU7IZBxysrT3psP_6qhzImu0