- CASE FILE
My husband has some type of neurological disease that the doctors can't figure out. Now not receiving treatment due to no insurance.
ABOUT THIS CASE FILE
We are seeking help for my husband because we cannot afford health insurance. We tried to get insurance and were quoted a premium of $1700 a month. (unaffordable). Plus the doctor he was seeing seems to be in over his head and can't figure out what is going on with him.
Hubby has swollen feeling all over his body. He suffers from tremors, and tingling in arms and legs. Also has electrical shock feeling in fingers and toes. His legs go completely numb and he has trouble walking during these episodes. He drags his feet and sometime falls down. He has had fainting issues and will be out for approx 5 to 10 minutes.
He also has what I consider to be seizure episodes where he completely blanks out. His eyes get this blank look, his face goes slack, and he drools. We call out to him, clap our hands in front of his face trying to reach him but he doesn't react at all. He will be "out" for approx 15 min.
He suffers from severe eye pain and blurred vision at times.
His face goes numb.
He has a sensation of bugs crawling all over him and he starts having an itching sensation underneath his skin. He will scratch and scratch but can't get any relief from the itching sensation because it isn't on the surface of his skin but underneath the skin where he can't reach. (nerve issues?)
He also has the sensation of walking into a spider web and the webs are hanging off his face. I catch him trying to pull the imaginary spider web off his face and I have to remind him there is nothing there.
He suffers from memory problems. We moved across the country and were in our new home for 10 days and he got confused one night, not remembering where we were and did not remember the move, which took us 22 hours to make. He actually lost a job as a result of his memory issues.
He was in a car accident several years ago that left him with herniated discs on C3-4, C4-5, and C5-6. He had surgery to repair C3-4 and C5-6. He felt much better for awhile until he tripped on something at work. As a result he suffered a labial slap tear in his shoulder which required surgery, as well as carpal tunnel in hands. Re-injured his neck with new herniation on C1-2, and C6-7.
Contracted MRSA in left armpit in May of 2015, which required surgery and he nearly died. (doctor only gave him 20% chance of survival as the infection was severe)
Doctor seems to think the MRSA may have activated this neurological disease.
He suffers from what MS patients refer to as the MS hug. He says it feels like he is being hugged tightly across the chest by a bear. He also has the sensation as if he is being choked and cannot swallow anything during these episodes.
His doctor did a brain MRI but failed to notice any lesions on his brain, which would indicate MS.
He has extreme nausea and has lost over 50 pounds since all this started. He will eat and immediately throw up his meal. His body for some reason cannot tolerate beef products any longer and prefers to eat fish or anything creamy as these items seem to set better with his body.
Doctor put him on Lyrica and then Cymbalta, but he cannot take any of the drugs that are similar to these because they make him extremely depressed and suicidal. (he is NOT a suicidal person normally unless on these meds.) These meds also mess with his depth perception and make it easier for him to fall.
His doctor put him on pain medication to treat some of his symptoms, but these cause him to throw up blood, pee blood, bowel movements full of blood, and bleeding from the nose and ears, so he no longer takes pain meds.
He states that sometimes it hurts to have anything touching his skin, such as clothes or blankets at night, almost as if he has complex pain syndrome (CPS).
His mother also has same type of issues. She has been diagnosed with Parkinson's disease, but his doctor didn't think this was his issue.
He has muscle weakness in arms and legs, and he has lost some muscle definition since this all started.
He does not sleep at night. He may get 2 hours of sleep, if he is lucky, but it is intermittent and not 2 straight hours.