- CASE FILE
I have hepatic Adenomatosis. It is 16 tumors on my liver. I am only 31 years old, but I am now unable to work or live a normal life.
ABOUT THIS CASE FILE
I was diagnosed with hepatic Adenomatosis by the Mayo Clinic. I have 16 tumors on my liver, some small, some the size of an orange or grapefruit. They are benign but could turn to cancer. They cause me a wide array of symptoms and I am now unable to work or live a normal life at 31. Most days I feel like I have the flu. I am tired all the time. I have a hard time breathing as the tumors are pressing up on my diaphragm and lungs. I am very nauseated and dizzy. I also have severe pain in my liver area from the liver capsule being so stretched out. I have been to the Mayo Clinic, Vanderbilt, Barnes Jewish, and several local hospitals, but no one is able to help me. I have had two embolizations that did not do anything and almost killed me in the process. I have reached out to someone I saw wrote a medical paper on my disease and he said everything I am experiencing is normal for the patients he has seen with this but it is so rare there are not many studies on it and no cure or good line of treatment. I am not giving up that easily though. Please help me!