- CASE FILE
My husband has random pains in his legs and arms. He has dizziness and balance issues. All symptoms started about eight months ago.
ABOUT THIS CASE FILE
Since around January of 2019, my husband has random pains in his legs, sometimes they are shooting pains. He has pain in the bottoms of his feet, he also has random pain in his arms and hands. He experiences numbness and tingling in his extremities. He gets dizzy spells and stands wobbling until the dizziness passes. He has fallen twice. He has headaches and chest pain which radiates to his back and shoulders. We have been to a neurologist in Fairfax and seen a neurologist at Johns Hopkins. They both did EMGs, blood work, small cell biopsy on his legs. Everything has come back WNL. The neurologist at Johns Hopkins said he didn’t think it was neuromuscular but couldn’t say what it was and even described him as an “enigma” We’ve been to a rheumatologist who did more blood work and told us that there wasn’t a need to see him again because whatever was going on didn’t fall with the rheumatologist purview. We have had a few trips to the ER and to urgent care where they have done MRIs on his head, neck, and spine and xrays on his ankles. The MRIs came back normal and his ankle xrays showed some degenerative changes to his bones. The PA at the urgent care suggested he make an appt with a vascular specialist. Our appt for that is in Sept, which was the earliest we could get in. As I write this we are in the ER because he has chest pain. He is getting a CT scan of his chest now, the morphine they gave him hasn’t helped his chest pain. Once his prescribing doctor for humira was told about his symptoms she took him off of it, he was on it for his crohns and psoriasis. His last dose was in December 2018. Luckily he hasn’t had a crohns flare up since stopping the injections. His psoriasis is currently being treated with clobatasol cream. He takes medication for his seasonal allergies and takes Prilosec for acid reflux. Before all this started he used to get food stuck in his esophagus and the worst was when he would choke. His GI doc did an endoscopy, the stretching of his esophagus has helped, he hasn’t choked on food since. This has all been immensely frustrating for my husband and I since no one knows or can tell us what is going on with him. We are running out of options and every day my husband gets worse.