- CASE FILE
Possible AGENT ORANGE Inheritance from Father, 6 Chronic Pain Cond, CRPS, Degen. Disk Disease, Mult. Surgeries, Meds w opioids I want off
ABOUT THIS CASE FILE
This may not be applicable but it HAS to be mentioned. My father was in Vietnam and was exposed to Agent Orange. Its been documented with the VA. Right now the VA does not genetically test or acknowledge Agent Orange inheritance unless the patient has Spina Bifida.I was conceived within 6 months of my father coming home from the Vietnam War. All my friends and family say the same thing i feel. There has to be some underlying health issue with me that is causing many of my health issues if not all of them. I have been in pain as long as I can remember. I could not fit all my Diagnosis in the above boxes and some of my diagnosis are not listed. I'll list everything below.
I used to be very active. I was a downhill skier, soccer goalie, rock climber, touring musician, and more. I can't do any of this right now due to my health issues.
I am a pro musician that has had a lot of great opportunities happen to me. I was on MTV years ago and I have played all over the USA and Europe. My band is currently recording our next album whenever I feel up to doing so. Its taking a lot longer than the usual recording takes because of me. We have the opportunity to travel and play in the USA, Europe, and South America when its done. I have never been to S America and it is a dream of mine. The issue is my health, pain, and insomnia has gotten so bad that I don't know if I am going to be able to do it in my condition much less go work a job like I want to do too.
I am already on Social Security disability for multiple spine issues and CRPS. I would love to be able to work again and drop it. I am also a degreed Electronic & Computer tech/engineer , ex-Chef, and Technical Sales Engineer. I haven't worked since 2016 and its been very tough on my family and wife. I did not get disability until March of 2019 and I have been disabled much longer. My first application went in in 2011. If I could get back on a regular sleep schedule that would help a lot but my pain is the worst at night and I don't know a human in the world that can sleep through CRPS, Fibromyalgia, Neuropathy, Radiculopathy, Cervical, Lumbar, foot and leg pain then get up and work without any sleep and still in pain. I have times I am up for 2-3 days at a time and then I will sleep for 18 hours. Sometimes I will sleep at night which is nice but its mostly the other way.
My wife and family have stuck by me through this and without my super supportive wonder woman wife and family. I don't know where I would be health wise. I took charge of my health issues years ago because I learned that if I didnt take charge of all of these problems no one else would. I want to get better and the only way to do that is with a positive attitude and taking charge of your own life
I also do have an ulcer on the bottom of my foot that is having a super hard time healing. Its been a year and a half and I am still seeing my podiatrist every 3 weeks. I take calcium, vitamin D, vitamin k to keep my body healing but this has gone on a long time.
I've had multiple surgeries(11 knee, 1 foot,3 lumbar, 1 cervical and another major cervical coming Sept 4th), have a SCS Stimulator, medications, hyperbaric oxygen therapy, injections, acupuncture, massage therapy, and ketamine infusions.
I have so many diagnosis that there has to be something causing all this. Diagnosis and med list below. Thank you from the bottom of mine and my family's heart for any help you can give.
I have been on opiates off and on for 10 years and now considered a long term opiate user by my pain Specialist. I want to be off all the meds but right now if I stopped them I would be in so much pain I would have to go to the ER.
Complex Regional Pain Syndrome(CRPS RSD)both feet, right lower leg) ( worst pain ever)
Cervical stenosis C3-T1(Surgery is 9-4-19)
Lumbar Stenosis L4-S1(surgery 1-14-19)
Degenerative Disc Disease
Right knee( Replaced '09, Revised 2014, Cartilage Replacement 2002, 4 Scopes
Left Knee (4 scopes)
Chronic Pain most of body
Radiculopathy(legs,feet,toes, arms, hands, fingers)
Nerve pain neck back arms hands feet legs
Lightning bolt pain legs feet arms hands
Burning pain legs feet arms hands
Clamping pain ( feet )
Numbness ( feet/lower legs loss of sensation ) ( shoulders arms and hands )
Body over heating
Low grade temperature (normal 97.1)
Morphine fast release 15mg 4 x day
Morphine slow release 30mg 2 x day
Lyrica 150mg 3 x day
Methocarbamol 500mg 3 x day
Cymbalta 60mg 1 x day
Losartan/HCTZ 100/25mg 1 x day
Colchicine .6 as needed for gout
Allopurinol 300 mg 1 x day
Temezepam 15mg as needed
Amitriptyline 50mg 1 x day
A, B-complex, B+, B12 Foilate, C, D, K, turmeric, gaba, potasium, magnesium, calcium, alpha lipoic acid, Niamenicide
What I want most is to get out of pain so I can get off the opiates and any other meds I can. If I can get out of pain I will be able to function again and get my life back.
There is so much to my case I may have missed a detail or two. I can provide my doctors so my files can be obtained too.
Thank you so much for reviewing my case. I know its a complicated one.