- CASE FILE
When I was 27 years old I started having strokes. After cerebral angiogram, doctors find out I have a rare brain disease called Moyamoya.
ABOUT THIS CASE FILE
Not sure exactly when I had my first stroke but when I was 12 weeks pregnant the whole left side of my body went completely numb. My vision wasn't right and I was having trouble speaking. I was rushed to the Er and they kept me for a few days for observation. Thankfully I didn't experience and deficits due to stroke. I was referred to an amazing stroke doctor. Since I was pregnant we couldn't do further testing, so after I gave birth to my little girl a cerebral angiogram was done. With the results it was clear to him that some of my brain vessels were very narrowed, a disease called Moyamoya. Moyamoya means puff of smoke in Japanese. Someone with moyamoya will have many tiny vessels to compensate for the blocked vessels. Having narrowed vessels means my brain wasn't getting enough blood which was causing the strokes. I was referred to a surgeon at the Cleveland Clinic who specialized in this disease. Surgery was the best option. Surgery on the right side of my brain happened in April, 2019, then 2 months later the left side. There is no cure, only a surgery to give you more time. Thankfully since the surgeries I haven't had anymore strokes, but it's still very scary to have a rare disease.