- CASE FILE
Severe gut issues for 2.5 years. This has RUINED MY LIFE and significantly changed my day to day. Surgeries and misdiagnoses.
ABOUT THIS CASE FILE
2.5 years ago I began to have severe "crashes" that included all the symptoms noted. I realized after about a year it was connected to foods. I began being intolerant to so many foods - sucrose, fructose, glucose, egg whites, potatoes, soy, and gluten being the most severe. I can't eat SO MANY THINGS. The things I can eat freely are chicken, turkey, white rice, cucumber, cooked carrot, radish, and lettuce. Literally everything else gives me issues to some degree. If I ear one of the really bad foods the crash will last for 4 days - severe nausea, severe stomach cramping, bright yellow fluid diarrhea that burns like the fires of Mordor, visions issues and dizziness. If I eat some of the more minor things I will get severe stomach cramping, some nausea and dizziness/vision issues. Nausea has become a daily thing. Exercise makes my condition worse but it may be because I can't get many of the nutrients I need. I am constipated most of the time. My stool when I don't have diarrhea is always a yellow color, though someone formed. I have to take things to help me go.
I have found I can tolerate dextrose, but almost no other sugar, especially sucrose. Even a little sucrose will throw me into severe crashes. Fructose is worse than glucose.
I have been misdiagnosed a few times and have done SO many tests. All tests come back normal. My doctor even removed my gallbladder thinking it was the issue, but that made me worse.
Tests I have done - Sucrose intolerance, MCAS, carcinoid tumors, thyroid disorders, a number of other autoimmune disorders, a comprehensive stool test.
I was diagnosed with SIBO and treated it hardcore for more than a year with no change. The best thing I ever did for myself was to do the Physicians Elemental Diet for 28 days. My gut apparently hates food, and it loved not having to digest food. It felt great and I would stay on the diet but it costs about $2000+ per month. My body just HATES food. I am terrified of food. I feel like crap every day all day. I have gotten good at hiding it.
Before my crashes began I weighed about 205lbs (I know, horrible for my 5'2 frame) and over the course of about 12 months I got down to 105lbs with absolutely no trying. I was just SO SICK until I pinned down exactly my safe foods, but even then even my safe foods sometimes give me issues.
I have been to 7 different doctors, and all of them get to the "end of their expertise" and give up on me. I don't know what's wrong with me but I need help. I have 5 kids and I can't be an adequate mother. There's absolutely no way I can hold down a job. I have become a hermit in my own home, to fatigued and sick to go out very often. I NEED HELP.