• CASE FILE

SUMMARY

My four year old daughter has a rare genetic condition called SAVI (STING-Associated Vasculopathy with onset in Infancy) and we need a cure!

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MULTIMEDIA

ABOUT THIS CASE FILE

My daughter has Dysphagia, Laryngomalacia, Immune Deficient Cryptogenic Organizing Pneumonia Interstitial Lung Disease, Arthritis (unknown type), Failure to Thrive, Anemia, a recurrent Diaper rash, a skin rash that can cause necrosis o ...
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