- CASE FILE
I’ve gained 50 pounds in a year and I’m still gaining. I have unexplained joint pain. I’m tired all the time.
ABOUT THIS CASE FILE
I’ve been having multiple symptoms for the past 5 years. I’ve been to numerous specialists. They keep giving me new diagnoses and no one agrees with what I was diagnosed in the past. My first symptom was hip pain. They’d hurt so much. The only way I can describe the feeling is like the bones of my hips were sticking way out. I made a doctors appointment. My regular doctor wasn’t available. The one I saw told me I had bursitis and that taking over the counter pain reliever would work. I did what I was told, but the pain persisted. I finally got an appointment with my regular doctor. She did bloodwork and diagnosed me with mixed connective tissue disease. She referred me to a rheumatologist. I went there periodically for about a year until I was told it wasn’t mixed connective tissue disease and it wasn’t lupus and that I didn’t need to come back unless I got worse. A year after my hip pain started I was active and eating healthy. I’ve always been naturally skinny, but I started gaining weight. My mom first noticed a fullness in my face. I ended up gaining 50 lbs in a year. I was referred to an endocrinologist. He did quite a few tests and diagnosed me with late onset adrenal hyperplasia. He put me on a pill, I don’t remember which and my symptoms kept getting worse. We got another appointment with the endocrinologist sooner than we were scheduled. He did a few more tests. He concluded that nothing else was physically wrong with me and he suggested I go on weight watchers. At this point my whole body looked blown up and I didn’t look anything like myself. I was tired and sleeping all the time. My right knee started hurting me next. It kept feeling like it wanted to lock up. After getting no answers a family friend came up with Cushings. I even saw someone’s YouTube video about their experience with Cushings and it seemed like it mirrored me. We got in touch with a Cushings specialist in a big city and they sent the tests locally for me to do. When the results came back they called. They said I didn’t have Cushings. My mom cried because we both knew something was wrong. The person did say they recommended me going to an endocrinologist because I did have low thyroid function. I’ve since had scans and 2 small nodules. I was put on levothyroxin. I asked if I had hashimotos and the new endocrinologist said most likely. Since then bloodwork has shown I don’t have it. I was also diagnosed with pre diabetes. New bloodwork has shown I do not have it. I’ve also been diagnosed and undiagnosed with PCOS. I did have a cyst years ago and it went away with birth control. I’m still always tired no matter how much sleep I get. I was tested for sleep apnea and I don’t have that. Also my vitamin levels have been tested and they’re normal. I’m getting more random aches and pains. The one constant seems to be my hips and knee, only now my knee feels like it wants to go out on me and I’ve almost fallen. I’m still gaining weight. My energy is low. I get random numbness in my feet and face. My feet sometimes feel prickly. I’m more forgetful than ever and also more clumsy. I saw a neurologist recently. All his tests came back normal. I’m seeing a another new endocrinologist and he said more than once it wasn’t my thyroid causing my symptoms.