- CASE FILE
Unknown cause of wide range of symptoms and complications. Each specialist claims there is nothing they can find nor do for me.
ABOUT THIS CASE FILE
It really started hitting me 2 yrs ago. First It is important to mention I am 37 years old. I started with episodes that appeared as strokes. Confusion, bp fluctuations, exhaustion after, complete facial paralysis to lower left side of face. 3 trips to ER being told its only lyme induced bells palsy. I have 3 markers for lyme only. 41 kd (igG), 58 kd (igG), 23 kd (igM). Originally joint pain associated with lyme. After these episodes im left confused and difficulty speaking. I even have forgotten my childrens names at these times.
At this time a area just below my skull to left side of spine in my neck was a hard lump. Than small quarter size lumps appeared on lower spine just above pelvis.
This is about the time I noticed my normal aches and pains from working were more intense. The pain in my bones had become intense. My teeth have never been good but at this point eating normally isn't a option as they crumble on basically anything.
Than the breast pain started. Than the pains in my arm pitts and groin area. These pains are sharp than like a sever Charlie horse. Some times it starts as only one or two areas but than goes into it lighting up like Christmas lights. These pains lead me to finding lumps. Many ultra sounds and mammograms later I have had many possibilities all pointing to benign. I had the plastic surgeon who did my breast implants look and he felt they all are benign. He still did a biopsy to lump in left armpit believing it was a lymph node. It came back as PASH and focal usual hyperplasia. But no lymph node.
Between this my pcp has a dexia scan done. I have a T score of -2.9 with no family history of osteoporosis.
She has also tested me for : perisits all negative,
Ebv viral capsid ag (vca) ab (igg) =321
Thyroid peroxidase antibodies = 37
CO2 levels and Urea nitrogen (bun) are always either low or borderline low
Vitamins levels A and D are low out of range.
Parathyroid hormone intact = 67
Blood calcium is normal but urin calcium was slightly elevated during testing.
Salmonella H, type a = equivocal
Salmonella O, type VI = positive.
Many other tests done such as RA factor done and negative. Genetic testing done through tell me gen, nothing significant but a few oddities nothing any doctor felt concerning though.
My life has completely changed. I know have sever back pain, iv had tendons torn with literally no activity, I have night sweats and sometimes during the day that smell sickly sweet (blood sugars always in normal range). I have severe joint pain through out my body. Hip pain that leaves me in tears. My vision has greatly changed. Shortness of breath. Migraines that I have never had previously. Dry skin and hair that is starting to fall out. The list goes on.
I recently learned of the recall of breast implants but I have smooth saline though the brand has recalled many others (Natrelle 68hp).
I am desperate to regain some form of life. The options being offered are basically pain medications which I have manged to avoid but suffer and wait and watch.
Im scared and honestly feel like I'm dieing.