- CASE FILE
Since 2011 I have had major health issues and several close calls with death. Doctors can't figure out what is causing my current symptoms
ABOUT THIS CASE FILE
My name is Alison and I am 40 years old. Early July of this year I started having debilitating pain in my pelvic bone, very low left abdominal area and lower left back parallel to where the abdominal pain is. The pain is constant and it never goes away the severity of it varies but on a scale from 1 to 10 it is never below a 5 and typically is a 7 or 8. Due to the pain I have not been able to work for over 6 weeks or lead my typical active life. I am a preschool teacher and I fully love my job but it is a very physically demanding job and I can't perform well while I am in agony. During the course of the first 3 weeks of the issue I went to the general doctors numerous times and had various scans, blood and urine tests performed. There were no issues with my kidneys, liver or bladder that would explain this. They did find a very mild case of diverticulitis but due to the lack of inflamation and no presence of fever and other symptoms ruled this out as the cause. They also pin pointed that my abdominal pain was directly over my left ovary. I made an appointment for the end of July with my gynocological oncologist that did almost a full hysterectomy for me in 2013. In mid July I went to the ER one evening because the pain was so severe they ruled out a contorted ovary. Over the course of a three week period I lost 22 pounds and went down 3 clothing sizes however my abdominal area is bloated. I had and still have close to no appetite and I get full very quickly. I also feel like I need to urinate all of the time. I am exhausted and once again anemic. I went to the oncologist that performed my hysterectomy and we decided to do exploratory surgery to rule out Ovarian Cancer, Cysts or other issues. I had the laprosopic surgery on August 6 and she found and removed scar tissue as well as some residual blood from a ruptured cyst. I am healing nicely from the surgery, however I am still having the exact same pain and symptoms from before surgery and I am feeling so desperate to find out what is causing them. I am writing because I believe that the answer has not been found as to what is causing my symptoms and I don't know where else to turn. I am overwhelmed and my body is tired of being in pain. I have been a warior fighting many battles to keep my body alive and strong since 2011 but now I neel help and guidance on where to turn. I need hope of finding answers and I believe that your team can help me. I didn't want to open with my background health information because it is long but I want to share it in case it is linked to my current issues and so their is a whole picture. Personally I wonder if there is a connection between all of these major illnesses that nobody has been able to piece together yet. Thank you for taking the time to read my case!
Background Info: In 2011, I experienced my first major medical crisis. It was discovered that I had a 99% blockage in the widow maker section of the heart. I had an emergency triple bypass surgery. After recovery I resumed life as normal and followed up and still do regularly with my cardiologist to make sure my heart stays healthy. It was during this time period that I learned that I had cholesterol issues as a non over weight toddler and nobody had told me or new the reasoning, cause or connection to the current heart issue. Since I did not have a heart attack prior to surgery I was fortunate that there was no actual damage to my heart but the surgeons were all in shock that I was still alive. Around 9 months after heart surgery I began to bleed extremely heavily vaginally. At first I just assumed that it was partly because I didn't have a period for so long and I was on asprin for my heart and my periods have always been irregular in severity, length of time etc. A couple months later it became apparent that it was like no other period I had ever experienced and I was at a point of soaking through everything within 10 minutes for hours at a time. I almost passed out and then went to the er. I had to have 4 blood transfusions for the amount of blood lost. During testing at this time it was discovered that it was not a period and that my uterine wall lining was too thick. Ultimately I was diagnosed with Complex Atypical Endometrial Hyperplasia and after trying alternative treatment methods I ended up having a Gyno Oncologist remove everything except for my left ovaries and left fallopian tubes. The right ovaries and tubes were not removed due to the hyperplasia but were removed during surgery because they did not look healthy and I had some concerning symptoms at the time. In between then and now I was diagnosed with Gastroparises in 2015, Type 2 diabetes in 2017 and I have suffered off and on with Anemia since 2011.