- CASE FILE
My daughter Josephine that is now 9 years old has been suffering with severe pain for years and no one can fgure out what is wrong with her.
ABOUT THIS CASE FILE
My daughter Josephine is 9 years old now but at 17 months old out of nowhere she began passing out which never got better but instead became more frequent. Over the last almost 8 years we have bounced from specialist to specialist and in that time my daughters health started declining where she is in severe pain every single day and now several of her joints are swelling up almost every day (hands, wrists, ankles, knees, fingers) over the last almost 8 years we have a laundry list of diagnosis and issues doctors have found but we have no solid connection to tie them together. (sme connect with some but not all of them connective together or make sense. We feel like Boston has written our daughter off and has told us to let her live in pain every day and pretty much hope for the best. This is the list of issues we are left with... Connective tissue disease, syncope, migraines, knee pain, ankle pain, anemia, recurrent UTI's, tight heel cords bilaterally, constipation, bilateral pes planus, knocked knees, hypermobility, patellofemoral pain syndrome, vascular pooling in the legs, myopia, anthralgia of lower legs, chronic pain, defrmities of both feet/disease of the musculoskeletal system and connective tissue, femoral anteversion, recurrent convulsive syncope, recurrent non convulsive syncope, decreased tolerance for exercise, intermittent vasovagal syncope, arthralgia of lower legs, polyarthralgia, chronic pain, anemia, bloating after meals, walks with non antalgic gate, increased laxity with talar tilt bilaterally, hyperextensible joints, easy bruising, chronic bilateral knee and ankle pain, 5 degree's talar tilt angle bilaterally of ankles, polyarthralgia, arthralgia of lower legs, marshall 5, has lost the ability to walk or stand more than a few minutes at a time, petellar instability, hyperextend fifth fingers beyond 90 degrees, significant hypermobility of the ankles, drops things a lot, poor pencil grip, positive trendelenburg test, chronic/early onset debilitating musculskeletal pain, lordosis.
Because of my daughters pain that has gotten much worse over time she uses a wheel chair and motorized scooter to get around when we are out because walking and standing is now too much for her. I fear she is going to lose her mobility completely. My daughter also has a LINQ Medtronic Heart Monitor Implant due to her passing out to watch her heart.