- CASE FILE
I have had more than 20 surgeries for tendons that seem to tear spontaneously, bilaterally, and repeatedly over the last 8 years.
ABOUT THIS CASE FILE
It started with pain in my left shoulder, resulting in my first surgery in 2011, where the long bicep tendon was torn. The doctors removed it from the insertion point in my shoulder, cut below the tear, and screwed it back to my bone. Then the right shoulder the next year. Next, i had tears in both hips which were repaired. Then back to the shoulders as the scar tissue had built up preventing me from raising my arms. Then my orthopedist determined I had hip dysplasia in my left hip so I had a total replacement in 2014 (I was 44). Following that, I have had 2 more shoulder surgeries and 3 wrist surgeries, the last one to completely rebuild my wrist. I have seen rheumatologists, immunologists, geneticists, and other special-ists. I have been to UCSF, Stanford, and now I go to the Mayo Clinic for medical care. So far, no one has found an answer as to what is happening or how to stop it from continuing. Stanford genetics department said they have heard of one other person where some of the symptoms might be similar enough to group us together, but there would need to be a 3rd person identified with these symptoms in order to qualify for a study. At best I hope to find at least one more person with some similar symptoms so maybe Stanford can do a study. I have pain in every part of my body that never seems to subside, and there appears to be no end in sight. I am out of options and out of luck at this point.