- CASE FILE
Diagnosed chronic pancreatitis. Severe abdominal pain all the time, even with morphine and hydrocodone, doctors are stumped about my pain
ABOUT THIS CASE FILE
I was healthy. I worked 40 hours or more a week with special needs children and teenagers. I had just finishes my masters in special education. One day, as I was dropping my last client off, out of nowhere I got very faint, dizzy, nauseous, and had some of the worst pain of my life. My clients family, who I was talking to, said I went white as a ghost. I drove home, vomiting in a cup the whole way there. The pain was so intense, I thought it was a heart attack. My dad took me to the ER where they took me straight back since I had chest pain. It took them several hours to finally diagnose me with pancreatitis. They had to send me to a different hospital by ambulance to get a bed. I was in the hospital over 4 weeks with the worst abdominal pain you can imagine, nausea, vomiting, dehydration, chronic fatigue, and dizziness. I was told my pancreas was too swollen to remove my gall bladder and I needed to be a little better first. When I finally got released from the hospital. I still had my gall bladder. About 3 days later I ended up back in the hospital with the same symptoms. They admitted me and did take out my gall bladder. I was there a couple weeks more. This was over 2 years ago. Since then, I have seen many doctors, had several admits to the hospital, plus even more ER visits. I got sent to see a pancreas specialist in Seattle. He tried putting a stent in my bile duct, which just barely eased the symptoms for about 3 weeks, then it got bad again. With multiple re-stenting, I never got better. I applied for disability and got it on the first try. I am still in and out of the ER pretty often. Even on strong morphine and hydrocodone prescriptions, the pain is still very bad. I struggle with eating and keeping food down. I am on a low fat diet for the pancreas. I also just got diagnosed with celiac and changed my diet even more for that. The pain is unrelenting. I have many sleepless nights. My social life is non-existent. If I am having a good day I can tolerate being in a wheelchair and going to the movies, but it usually takes a few days of being stuck in bed recovering afterwards. I stopped drinking alcohol a few months before the diagnosis, but I was never much of a drinker, certainly not enough to get this disease from alcohol. Taking out my gall bladder didnt improve my life either. The doctors are stumped and dont understand the cause of my pancreas issues. My amalayse and lipase levels are always in normal range even with all the symptoms of pancreatitis, which makes it hard for anyone to help me. The doctors are out of ideas and I'm miserable. I am still young, I will be 30 this year. Definitely too young for this to be happening.