- CASE FILE
Following an ankle surgery I developed CRPS/RSD. Doctors keep telling me they don't know why this happened to me "It just did".
ABOUT THIS CASE FILE
My doctors have no answer for me. They look to me for what I want my next treatment to be, relying on me to do all the research. Most of the time it is hard to get them just to listen leaving me feeling hopeless and scared. I continue to be told that "There is just not a lot of research on CRPS". Following an ankle surgery to repair ligaments and tendons and a nerve release I began having sever pain and discoloration in my foot. After 1 soft cast and 2 hard cast over a 6-week period it was unbearable. I have not walked on 2 feet in over a year. CRPS has taken over my life, I cannot work, drive, and I don’t have the desire to be social. The thought of anything touching my foot makes me sick. It is hypersensitive to touch, air, water, almost everything I encounter. I am unable to feel and bend my last 3 toes. My foot and leg will spasm uncontrollably sometimes for hours. My toes get a freezing sensation, then burning from my foot to my knee. I have taken several medications from Gabapentin, Lyrica, Percocet, Zoloft, Zofran, Lidocaine, and Steroids. I have had a series of lumbar injections, aquatic and land physical therapy, counseling, mirror box therapy, and acupuncture. I have the fear of having any other surgical procedures and developing CRPS in another area of my body. I understand now why they call this "Suicide Disease".