- CASE FILE
Muscle weakness, trouble swallowing, shallow breathing, fatigue
ABOUT THIS CASE FILE
19 year ago I started having extreme swelling in my right calf. I saw a cardiologist and she found no complications. 3 months later after 4 hours of being at work I began having muscle weakness and was unable to walk, talk, take deep breaths. This progressed quickly in another month and I was only able to get through getting dressed in the morning.
I saw a Neurologist and after a week in the hospital he diagnosed me with Myasthenia Gravis. He based his diagnosis on a positive result after being given Tensilon, my symptoms would subside for about 5 minutes. I was given Mestinon and steroids.
Not able to work and not having insurance my doctor sent me to the MDA and UT Health and Science Center in San Antonio, Texas. Because I test negative for the antibodies, Musk antibodies test and inconclusive EMG test it was decided after 10+ years I did not have Myasthenia Gravis and was told I should see a Psychiatrist and would no longer be treated. As of recent I had a full blown episode July 6, 2019 and had to be intubated. At first they thought it could be Periodic Paralysis, but upon release was told that was not the case and to "Go home and meditate and wait for an answer". After my release I was not able to walk or talk very well for two weeks. I followed up with a Neuro, after my consultation and reviewing my records he said he didn't believe I had MG and did not know how to help me and he was dismissing my case.
I have been hospitalized several times and there have been times when alcohol was blamed, but this is not a factor to me, because it is not always the case when I have had other crisis situations. There have been low potassium readings, but again I was told this was not a factor.
Everyday after repetitive use of my limbs I have weakness and will have to sit and rest for a while. There are foods I am not able to swallow and sometimes struggle to swallow at all.