- CASE FILE
I have been disabled/ill since November 2014 with an unknown autoimmune disease, P.A.P., and Degenerative Disk Disease.
ABOUT THIS CASE FILE
Other: Pulmonary Aveolar Protenosis, Cervical Stenosis, Degenerative Disk Disease, an unknown Autoimmune Disease.
I have been disabled since November 2014. After a bad cough/cold, I got better and suddenly worse again where I couldn't feel my fingers, toes, had a bad brain fog (unable to remember what I was saying just a minute before), overall pain, blurry vision and weakness so I could not walk on my own. I withdrew from postgrad school in London, UK, and returned to California with the help of my mom in December 2014. I have since been diagnosed with Cervical Stenosis, Degenerative Disk Disease, an unknown Autoimmune Disease, Fibromyalgia (and Chronic Fatigue Syndrome), and most recently Pulmonary Aveolar Protenosis (a rare lung disease). I have previously been in a wheelchair due to weakness and pain and now use a cane. I have been on oxygen 24/7 due to my P.A.P. I have had surgery on C3-C7 (laminoplasty) and a Lung Lavage in March 2019 (my 2nd lavage is scheduled for this month, August 2019). My doctors say that I have an autoimmune disease that is unable to be diagnosed yet despite the gambit of tests they have run for everything. Currently I am on disability at age 35, living at home with family because disability doesn't pay enough, walking with a cane and/or assistance, can't sit at a 90 degree angle due to the leg and knee pain, can't stand still for a long period of time due to weakness and pain, can't write with a pen and/or use utensils well due to hand pain, have to wear compression gloves to help alleviate the pain (doesn't take it away) when cooking and holding dishes and drying hair and hunting and pecking on the keyboard, use a TENS machine for pain, use ice packs regularly for back, legs, neck and arms, and more!